PATIENT SUCCESS STORY: GRACIE

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This is Gracie, an amazing three-year-old in Amarillo that THERAPY 2000 provides both speech and physical therapy services. Gracie was born with a very rare condition called Birk-Barel syndrome which is characterized by intellectual disability, hypotonia, hyperactivity, and unusual facial features. She had severe feeding issues and airway difficulties at birth but has already been discharged from feeding therapy because she has met all her goals. Gracie, her family and her feeding/speech therapist, Val Betts, worked very hard and now she can enjoy a meal with her family. Gracie’s diagnosis places her at one of only twenty-five in the world and the only one in Texas with the condition. Kristy, Gracie’s mom along with her dad and three older siblings feel she has the special gift of bringing all of them even closer together since she was born.
Gracie’s parents were told about T2K in Amarillo from one of her many professionals she sees in Dallas. Dr. Elizabeth Sperry of the International Craniofacial Institute had seen a lot of success with her patients she had referred to T2K in the Dallas/Ft. Worth area over the years. Gracie had her first of many surgeries at five weeks of age in Dallas and has had numerous returning trips over her three short years. She is a very hard working, happy and social little girl that enriches everyone’s lives that have the pleasure of meeting her!
She currently receives PT services with Ashleigh Wilson and ST services with Val Betts. Gracie loves them both. Her mom Kristy says they both therapists are very loving but push her to work hard to reach her goals. She also says they are like family and genuinely care about Gracie. Mom states from day one the therapists really listened to her and took the time to “learn and speak Gracie”. They have cried together, shared in their struggles and celebrated all of her many achievements. Kristy said parents of children with special needs, appreciate a therapist who will share in their hope and not focus on what they can’t do but in what they CAN do. She loves that Val and Ashleigh continue to provide new ideas and are always “thinking outside the box” as that is how Gracie thrives. The family was thrilled that Gracie’s very rare diagnosis did not scare the therapists in any way with such little research out there and they never said “we can’t”. The family was told Gracie would never walk or talk when she was born and in the short time with the T2K therapists, she has started walking and running alone as well as increasing her vocabulary to more than 30 words.
Gracie’s mom states that she would recommend T2K for a variety of reasons. First, because they have knowledgeable, experienced and caring therapists. Secondly, because the services are provided in the home it reduces family stress. Gracie is in her home environment and spends less time in the car with the family’s busy schedule. Third, it helped the family recognize safety issues in the home that they had not consider< And last but not least, the therapists encouraged the family to enroll Gracie into a mother’s day out program. This was something the family would have not ever considered and Gracie has flourished! Val was able to suggest accommodations at the mother’s day out program with her feeding issues and Ashleigh was able to suggest independent motor activities that they would have never known about otherwise. Gracie’s family is so grateful for T2K and what a huge difference it has made in their lives!

PATIENT SUCCESS STORY: GRACIE

cutegirl
This is Gracie, an amazing three-year-old in Amarillo that THERAPY 2000 provides both speech and physical therapy services. Gracie was born with a very rare condition called Birk-Barel syndrome which is characterized by intellectual disability, hypotonia, hyperactivity, and unusual facial features. She had severe feeding issues and airway difficulties at birth but has already been discharged from feeding therapy because she has met all her goals. Gracie, her family and her feeding/speech therapist, Val Betts, worked very hard and now she can enjoy a meal with her family. Gracie’s diagnosis places her at one of only twenty-five in the world and the only one in Texas with the condition. Kristy, Gracie’s mom along with her dad and three older siblings feel she has the special gift of bringing all of them even closer together since she was born.
Gracie’s parents were told about T2K in Amarillo from one of her many professionals she sees in Dallas. Dr. Elizabeth Sperry of the International Craniofacial Institute had seen a lot of success with her patients she had referred to T2K in the Dallas/Ft. Worth area over the years. Gracie had her first of many surgeries at five weeks of age in Dallas and has had numerous returning trips over her three short years. She is a very hard working, happy and social little girl that enriches everyone’s lives that have the pleasure of meeting her!
She currently receives PT services with Ashleigh Wilson and ST services with Val Betts. Gracie loves them both. Her mom Kristy says they both therapists are very loving but push her to work hard to reach her goals. She also says they are like family and genuinely care about Gracie. Mom states from day one the therapists really listened to her and took the time to “learn and speak Gracie”. They have cried together, shared in their struggles and celebrated all of her many achievements. Kristy said parents of children with special needs, appreciate a therapist who will share in their hope and not focus on what they can’t do but in what they CAN do. She loves that Val and Ashleigh continue to provide new ideas and are always “thinking outside the box” as that is how Gracie thrives. The family was thrilled that Gracie’s very rare diagnosis did not scare the therapists in any way with such little research out there and they never said “we can’t”. The family was told Gracie would never walk or talk when she was born and in the short time with the T2K therapists, she has started walking and running alone as well as increasing her vocabulary to more than 30 words.
Gracie’s mom states that she would recommend T2K for a variety of reasons. First, because they have knowledgeable, experienced and caring therapists. Secondly, because the services are provided in the home it reduces family stress. Gracie is in her home environment and spends less time in the car with the family’s busy schedule. Third, it helped the family recognize safety issues in the home that they had not consider< And last but not least, the therapists encouraged the family to enroll Gracie into a mother’s day out program. This was something the family would have not ever considered and Gracie has flourished! Val was able to suggest accommodations at the mother’s day out program with her feeding issues and Ashleigh was able to suggest independent motor activities that they would have never known about otherwise. Gracie’s family is so grateful for T2K and what a huge difference it has made in their lives!

Therapist Spotlight and Patient Success Story

PATIENT SUCCESS STORY AND THERAPIST SPOTLIGHT

Jan Coons is one of our exceptional OT’s here in the Houston Division. Jan graduated from the University of Indianapolis with an MS in Occupational Therapy in 1989. She decided to become an OT because she felt passionate about working with patients who had suffered trauma and initially worked in an inpatient rehab setting. After her children were born, Jan fell in love with pediatric therapy and we are so glad she did.

Jan has had the great pleasure of working with Lately Colletti over the last year and Lately’s mom is thrilled with the therapy she is receiving. When she came to us 11 months ago, Lately had severe language and speech deficits and difficulty with fine motor activities such as dressing, cutting and simply playing. Since then, she has been working hard with both Jan and her speech therapist, Fernando. When speech therapy began working with Lately, she was delayed by 15 months in her language skills. Since then, Lately’s language has improved greatly and now she is functioning almost at a 3 year old level. Jan says she has also made great progress. In the picture, you can see Lately working on zipping up her jacket. She is also improving with cutting activities and enjoying playing with toys.

Jan is such a great asset to our team, we are so happy to have her as a member of our family.