Resources for Children with Developmental Delays and Disabilities in Texas

In the last year, 1 in 6 children were diagnosed with a developmental delay or disability. THERAPY 2000 believes that a strong support system for the families of children with developmental delays or disabilities is of utmost importance. Along with the proper therapy, there are a variety of resources available to help children reach their fullest potential. There’s help out there for your child – It just isn’t always easy to find. That is why THERAPY 2000 has put together a comprehensive list of service resources available to our Texas families with children with developmental delays or disabilities. We have created two resource lists. The first includes all Texas state benefits, including information on Medicaid.  The other is a comprehensive list of family support services with many disability specific options. Remember- you are your child’s best advocate and it is important to remain informed to make the best decisions for their needs. 

THERAPY 2000 provides occupational, physical, and speech therapy services to children (birth-21) with special needs, including disabilities, developmental delays and autism spectrum disorders. We provide individualized home care rehabilitation services to the children in Texas in the comfort of their home or daycare.  In addition we provide Medicaid case management to children and pregnant women who currently have or are at risk for a health condition. Case Management for Children and Pregnant women (CPW) provides cost-effective services to children (birth- 21) and their family; it also covers high-risk pregnant women of all ages. If you have questions about our services or the ones below you can call us at 877.688.2520 and we can try to steer you towards the resources you need to help your child lead a healthy and successful life.

Resources for Children with Developmental Delays and Disabilities in Texas

TEXAS STATE BENEFITS

(This is just a short list, to see the comprehensive list click HERE)

2-1-1

2-1-1 is a state-wide social service directory that provides information and referrals to state programs and various local non-profits.

Texas Medicaid

Texas Medicaid is a healthcare plan available to low income families.

MAXIMUS

MAXIMUS is an organization that helps families navigate the various Medicaid managed care plans and is able to provide families with objective comparison charts.

Medicaid Buy In Program

Medicaid Buy In Program is a program for families whose incomes are too high for regular Medicaid. Families pay low (income-based) monthly premiums to receive Medicaid benefits.

Medicaid Health Insurance Premium Payment Program

Medicaid Health Insurance Premium Payment Program (HIPP) is a program that pays an individual’s private insurance premiums if they also have Medicaid.

Temporary Assistance for Needy Families

Temporary Assistance for Needy Families (TANF) provides financial help for low-income children and their parents or relatives who are living with them.

TEXAS FAMILY RESOURCES

(This is just a short list, to see the comprehensive list click HERE)

2-1-1

2-1-1 is a state-wide social service directory that provides information and referrals to state programs and various local non-profits.

The Arc

The Arc is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families.

Texas Parent to Parent

Texas Parent to Parent provides support, networking, training, and resources to families and children in Texas who have disabilities, chronic illnesses, and/or special health care needs.

Department of Assistive and Rehabilitative Services (DARS)

(DARS) is a state-wide program that provides resources for families and individuals in the following areas: rehabilitation services, blind services, early childhood intervention services, disability determination services, help for state agencies, personal attendants, autism programs and more.

Personal Care Services (PCS)

(PCS) is a respite program under Medicaid that provides attendant care contingent on income and medical necessity.

Disability Rights Texas

Disability Rights Texas provides legal and advocacy services for people with disabilities.

Ability Connection Texas (ACT)

(ACT) provides a full range of services for people of all ages with physical and intellectual disabilities across Texas.

Easter Seals

Easter Seals provides services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

If you cannot find the information or help you are looking for on either of these list please don’t hesitate to call THERAPY 2000 at 877-688-2520 and we can help to connect you with the services you need.

Developmental Checklist for children

 Concerned about your child’s development? Wondering if your child is hitting the right marks? Try our easy developmental checklist to see if he/or she is on the right track. THERAPY 2000 created a Developmental Checklist app to help you gauge if your child could benefit from occupational, physical or speech therapy. This checklist is not to replace an evaluation by a professional. Please remember all children develop at different, unique rates. Please contact us https://www.t2000.com/refer-a-child/ if you would like a professional evaluation for your child.

THERAPY 2000 Case Management Success Story

This Success Story shows why a therapist and case management team, working together, can make all the difference in our patients receiving the AUQC (Absolutely Ultimate Quality of Care). Kimberley Gibson, THERAPY 2000 Patient Services Manager guided this successful process with a THERAPY 2000 patient.

Successful Case Management in action

Nancy Estes M.A. CCC-SLP was treating a foster patient in the southern part of Dallas. The patient was scheduled soon to go back to his biological family.  Nancy found out that the child would still be located in her treating area with his biological family. I informed Nancy that as soon as Superior stopped following the patient, his insurance would be cancelled. In order to stop that from happening, his biological mother would have to apply for Medicaid as soon as she possible could.  This would give the patient Traditional Medicaid for one month while he was assigned to manage care. Since THERAPY 2000 is only in network with Molina, Nancy informed the biological mom that if she wanted to continue therapy with T2K that she would need to choose Molina.  I also inquired about the child’s scores and asked Nancy if she thought the patient would qualify for SSI.

On her first visit, Nancy explained to mom what needed to be done to keep the child in therapy. Amy Bihl, LMSW, and Nancy explained SSI to the family. Nancy stated that his scores were low enough to apply for Supplemental Security Income (SSI) and mom reported to Nancy that they did not have a lot of income.

Once the mom received all this information she began working on getting approved.  After Nancy’s first visit in the biological home, mom called and chose Molina.  She also called and applied for SSI. The very next day T2K received an SSI request for records. Wow, that was fast!

On the first of the next month the child switched to Molina.  Molina had to honor the authorization since it was already in place, but the child was up for reevaluation.  Molina denied services at that time and the child was put on hold.  During this time, mom decided to switch to AGP or Parkland so that she could continue to receive services.  Nancy submitted the DC but within a day or two, mom called back to say that she had gotten approved for SSI and wanted to continue with Nancy.  The plan still showed Molina, but on the first of the next month, the child switched to Traditional Medicaid SSI.

Nancy is continuing to treat with minimal missed visits during the hold.  This week, we added occupational therapy to the mix.  Team work, early planning, understanding the system and recognizing that the child would benefit from SSI services were key to assisting this family in continuing with therapy at T2K!

What is a developmental disability?

Developmental Disability – What is it?

Developmental disability  is a common diagnosis these days. One in six children, 15%, are currently being diagnosed with a developmental disability or delay. Developmental disabilities occur among all socioeconomic groups and races.

But what exactly is a developmental disability? It is a broad term encompassing many different diagnoses. According to the Centers for Disease Control (CDC), developmental disabilities are a group of conditions due to an impairment in physical, learning, language, or behavior areas. These conditions begin during the developmental period, may impact day-to-day functioning, and usually last throughout a person’s lifetime.  Some examples of more common developmental disabilities include; ADHD, Autism Spectrum Disorders, Cerebral Palsy, intellectual disabilities and vision impairment.

There are four main types of developmental disorders: nervous system disabilities, sensory related disabilities, metabolic disabilities and degenerative disorders. Many different subsets of disabilities nest under these four main groups.

What is a developmental disability diagnosed as a nervous system disorders?

These are birth defects that affect the functioning of the brain, spinal cord, and nervous system, which can influence intelligence and learning. These conditions can also cause certain behavioral disorders, speech or language difficulties, convulsions, and movement disorders.  There are some relatively common nervous system disabilities that you have probably already heard of or possibly know someone who has been diagnosed with.

The first is Intellectual and Developmental Disabilities (IDDs). This term describes a certain range of scores on an IQ (intelligence quotient) test. IDDs can result from a number of conditions. The most common conditions being Down syndrome and Fragile X syndrome. Children are born with these conditions.

Down syndrome occurs when there is an extra copy of chromosome 21. Down syndrome has a specific set of mental, medical and physical characteristics.

Fragile X mental retardation is caused by one specific gene that causes the body to produce low amounts or none of a certain protein. Without this important protein, the brain does not develop normally. Symptoms of Fragile X syndrome occur because the mutated gene cannot produce enough of a protein that is needed by the body’s cells, especially cells in the brain, to develop and function normally.

Another increasing common developmental disorder of the nervous system is Autism Spectrum Disorder. Currently 1 in 88 American children is diagnosed with an Autism Spectrum Disorder.  This disorder is diagnosed on a spectrum, meaning people with this condition can have mild symptoms to severe symptoms ranging in the way it affects the patient. This range of issues that the developmental disorder can affect includes communication skills, social skills and intelligence.

What is a developmental disability known as a sensory-related disability?   

Sensory-related developmental disabilities are another type of developmental disorder. Think of this diagnosis as a birth defect that interferes with the normal function of a body’s ability to sense the world around it. Children with a sensory-related disability have problems using and processing sensory information like sights, smells, sounds, taste, and touch. Sensory-related disabilities, such as visual and hearing problems, are often associated with other developmental disabilities. Sensory-related disabilities can often be a part of complex birth defect patterns. For instance; children with Williams’s Syndrome have trouble seeing spatial relationships between objects around them. Children with Fragile X syndrome can often be sensitive to loud sounds.

What is a developmental disability known as metabolic disorders?

This group of functional birth defects affects a person’s metabolism, which is the way the body builds up, breaks down, and otherwise processes the materials it needs to function. One example of more commonly known metabolic disorders is Phenylketonuria (PKU). This is a condition in which a problem with a specific enzyme, a protein that speeds up certain chemical reactions, causes IDDs. Another disorder is hypothyroidism, a hormonal condition that if left untreated in an infant can cause IDDs.

What is a developmental disability known as degenerative disorders?

Some infants born with degenerative disorders appear normal at birth, but then lose abilities or functions due to this disorder. Many times the defect is usually not detected until the person grows and ages and starts to show signs of loss of function. Degenerative disorders can cause physical, mental, and sensory problems, depending on the specific defect.  For example, Rett syndrome is a specific example of a degenerative birth defect. This disorder, which usually affects girls, is most often caused by a specific genetic abnormality.

Now that you have a brief overview of what is a developmental disorder here are some common treatments used for these disorders.

Many of these developmental disabilities do not have a cure but symptoms can be improved with pediatric therapy sessions from highly trained therapist like the ones that work at THERAPY 2000.

Children with Down syndrome, the nervous system disorder, can often benefit from speech therapy, occupational therapy, and exercises for gross and fine motor skills. They might also be helped by special education program and support groups like Best Buddies.  Surgery can also help medical symptoms, like correct heart defects that are often common in this diagnosis. People with Fragile X syndrome can get help to reduce or eliminate some of the common learning, physical, social and emotional, speech and language, and sensory problems. As is the case with many developmental disorders, the sooner those with Fragile X get help, the more they can learn and the better their outcomes.

There are a variety of treatment options to help with the symptoms of autism spectrum disorders.  These may include behavioral, occupational, physical, and speech-language therapy.  In addition, educational specialists can help guide the child’s school experiences.

Girls with Rett syndrome can be treated for some of the problems associated with the condition. Treatment works on slowing the loss of abilities, improving movement, and encouraging communication skills. Physical therapists, occupational therapists, and speech-language therapists may all be part of the prescription. Medication or surgery is also effective for treating some of the symptoms of Rett syndrome.

Hypothyroidism, or underactive thyroid, treatment includes daily oral hormone treatment.  The most effective treatment for PKU is a special diet that carefully limits the protein phenylalanine (Phe).  People with PKU who are on this diet from birth or shortly thereafter develop normally and usually have no symptoms of PKU.

How to know if your child has a developmental disability?

Skills such as taking a first step, smiling for the first time, and waving “bye-bye” are called developmental milestones. Children reach milestones in how they play, learn, speak, behave, and move (for example, crawling and walking).

It is important that you keep watch to see if your child is meeting common developmental milestones. All children develop at their own unique pace, but these milestones give a general idea of what to expect from your child.

If your child is not meeting the milestones for his/her age it could be an indication that your child has a developmental disability or delay.  If you do see a red flag or are simply concerned please talk with your child’s doctor or health care provider and share your concerns. It is best not to wait as with most medical conditions the sooner treatment begins the better the outcome.

Concerned about your child reaching the appropriate milestones for his/her age? Please download our Developmental Milestones chart here.